I am home

I was able to be discharged on friday afternoon.     It was wonderful once again to walk into my home without being attached to anything.   I had a pretty remarkable week last week.   Every day, I made some progress and by Friday, most things were under control and I had been weaned off the nutrition and most IV's.   I am eating but it it restricted, but I'm just happy to be able to eat and drink.  
    I have learned to hang IV's as I have about 4 hours of IV's every day.   Home health care has been great.   I also take about 12 different types of pills twice a day.   There is a lot to keep track of.   I'm still weak, but as I am home and walking around more, I can tell that I'm getting stronger.   I'm pretty slow, but at least I can do personal things by myself. Last week, I was pretty dependent on a lot of help for everything.
     It will be a long and slow recovery.   We will not know for a long time if it worked the way we wanted to, but we are hopeful and feel at peace. The first 40 days and then 100 days and then 200 days will give us a better picture.  And then it will be another 2-3 years before we know what the outcome is      I am on heavy steriods and immunosuppressive drugs so I am vulnerable.  My blood counts are at a yo -yo right now, but going in the right direction. (All the meds have an affect on this.)
      Andrew seems to be my lucky charm.   He planned on coming out last weekend which he did and I went home-just like what happened in July.    It was great to have him here for 48 hours.   Anthony was with us at the beginning of this 3 1/2 week stay, so I had two great bookends, and Katie and Doug to fill in and comfort the rest of the time.  (And a shout out to sisters who continually encouraged me and helped where they were able to. )    
       Once again, I am so grateful for love, concern, good doctors and nurses, and science that has made this possible.   I also believe in prayer and know that prayers of family and friends were heard in my behalf and answered in small and miraculous ways.  
       Thank-you for your interest and attention.   It means so much to me and keeps me buoyed up.   Let's hope for no complications and that I can continue to stay home.   I do have clinic visits twice a week.  Amazing how fast the time has gone here at home as there is so much to keep track of.  
Thanks for your love.  So upward and onward to a healthy fall and winter.
Love you all,
Kathy